Tina, we are sorry to hear about the diagnosis. There is a tremendous amount of information and support in this forum. The archives here will most likely answer many of your questions. Without a doubt knowledge is power when confronting MDS. As you have started to realize MDS is no bargain. You will soon realize that everyone is different in their experience. There are many similarities however and it is helpful to draw on the experiences of others. Ask questions here and you will get answers.
The best information (I believe) about MDS is the two part two hour presentation by Gail Roboz, MD at
https://live.blueskybroadcast.com/bs...=1418&CAT=8549