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You are talking to a group of people with complete empathy for your situation Tina. An MDS diagnosis was uncharted territory for most of us. One of the first things to do is to write down all your questions and get answers from your haem/onc specialist first.
As Baillie said there's loads of help on this forum once you have specific aspects of your husband's MDS to discuss with us.
One positive for starters is that your husband has youth in his favour!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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