|
I think that you already received the responses that you needed here, but I changed doctors as a result of this same retort. If the doctor does not want to answer my questions, he/she does not want me as a patient. It is important to understand the disease and treatment options to a degree that you are comfortable with as a patient. Some patients really don't care about the details and just want to be treated, but others need more information.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
|