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Old Fri Jul 4, 2008, 09:46 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I too agree the WBC growth factor needs to be reduced then stopped all together. I also feel you would benefit greatly from a second or even a third opinion from some doctors who have extensive experience with AA. I would suggest either you or doctor consult with NIH, Dr. Neal Young. And Dr. Margois from Childrens Hosp of Wisc. is very well respected by parents whos children have AA. If your doc won't or takes offense, you can contact these docs on your own. There are others on this board who have done that and can help you.

I find it disturbing for a doctor to predict the outcome of death for anyone with AA, especially so early on in treatment.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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