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Old Thu Apr 12, 2018, 10:56 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
DelleC any change of heart from your sister in law? Any plan B from the Drs?

Yes Lisa so grateful to Germany and their commitment to matching donors!! I’m trying to learn German now as a show of gratitude. So far we haven’t been able to connect w his Donor so we are going to see if the info is still correct.
Honestly Lisa as much as I try to repress it I feel the same way. I would and would have in a heart beat. Even before we were personally affected.
But it’s funny the things people end up having in common w their donors after transplant like taste and such... his sister makes questionable life and health choices it was probably a blessing lol
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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