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Old Tue Mar 20, 2012, 09:18 PM
kgtuck kgtuck is offline
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Join Date: Mar 2011
Location: Sylva & recently Waynesville, North Carolina USA
Posts: 47
Dacogen user

Hello, Cheri, have had a good experience with dacogen. My only side effects have been constipation (controlled with senocot s) just for a couple days at the end of the treatment week; and the fact that the drug can affect the white counts; seems to be bringing mine down after each treatment, but they bounce back during the 3 weeks off treatments. But, I have been transfusion free for about 3 years now. May just have a couple sluggish days a month that only requires an afternoon nap! Also, my hgb and platelets have not been affected by the drug after the initital 3 months that it took the drug to become effective. I had heard, but may not be a fact, that the drugs vidaza and dacogen are very similar, but dacogen having slightly milder side effects. If you have any other questions re: dacogen, just send me a note! Take care!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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