I would hope with that EPO level she should have some benefit. I think John did a 40,000 dose each week. It did help him get transfusion free a bit faster but at some point, there was no longer a benefit so he stopped it. He was finally at a point where his BM was able to maintain things without it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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