From two drugs to none
Hi Kirby,
Sorry to hear your blast count is so high. Hope the Promacta helps your platelets. Based on the count, you are into leukemia. Have you asked your doc about leukemia drugs that may be more appropriate for you?
As mentioned in my last missive, I went off of Revlimid prior to the BMB. My counts rebounded really well so we decided to give me a vacation from Vidaza. As of now, the only MDS med I'm on is Exjade. My serum ferritin is just over 1000 so I may drop that also soon. I was on for a year about 2 years ago and my count dropped from 1500 to 800. It stayed low for about a year and I started up on it again. Very expensive; I blow through the donut hole in a little more than a month.
Not sure what I'll be trying next, back to Vidaza or something else.
Let me know how you're doing.
Steve
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Steve Kessler,Age 71, Dx 3/2001, Currently AML converted from MDS, 5q-, 11q23, Negative response to Aranesp, Revlimid. Partial response to Vidaza in the past. On a study using ON1910.NA, counts too low to go to Stanford on schedule.
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