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Old Wed Jan 17, 2018, 05:34 AM
Barb Barb is offline
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Join Date: Jan 2018
Location: Columbus, Ohio
Posts: 28
Sue,
Thank you for the welcome. I guess that complacency is an attempt at normal life. I am ready to be complacent about this area of my life again so I can be more passionate about other things. I hope your husband is able to maintain his good response. I wish we could all be complacent about bone marrow failure. Ok, pity party over.

I do not have a donor. We have never even considered the possibility since with the 5q- syndrome diagnosis, I have been considered low risk. I am still waiting to hear from the hemo on the flow cytometry report that is to recount the periphreal blood blasts.

The James is not considered a COE. However, they do have an award winning hematology/oncology unit. They are a very well known university affiliated cancer clinic. They do a great deal of cutting edge research and have doctors who specialize in very specific subcategories of each cancer. My previous dr there was an MDS specialist. So I feel good about returning there.

Barb
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