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Hi Cheryl - I feel OK - tired and in a good bit of pain - but ok. I just finished my first round of Vidaza (five days) and started taking Venclexta - a drug approved for a CLL with a certain mutation which they think for some reason might be helpful. I don't think we've given up completely on the first transplant, but the Dr. thinks a second transplant is most likely to result in a more durable remission/cure - We'll give he chemo a chance, but I don't think we'll wait too long if we have to got with another transplant. If we do, I want to go in relatively healthy. Thanks for your support.
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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