Thread: Lacking concrete diagnosis
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Old Thu May 21, 2015, 08:17 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by peggye View Post
New to this forum as well. My symptoms do not fit anything in the text books but is somewhere in between MDS and AA so am being treated with Revlimid after nine months of cyclosporine showed not improvement. Have been on 5mg of Rev for one week so does anyone have any idea how long it takes for this med to kick in? Have fever everyday in late afternoon, take Tylenol and fever subsides.
"somewhere in between MDS and AA" In what way?
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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