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Old Sun Sep 23, 2012, 01:08 PM
ssdavi71416 ssdavi71416 is offline
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Join Date: Mar 2012
Location: Atlanta Georgia
Posts: 105
Your sister

Tell your sister it will be OK. This is a scary disease but it is treatable.

Many people have platelet levels around you sister's level...I did. She needs an extrasoft tooth brush and must be very careful brushing her teeth. Probably shouldn't floss either. Platelet transfusions seem to only last about three days. There are obviously issues that come up concerning bleeding. Work closely with the Dr. do not hesitate to call them. I was on aminocaproic acid to help with clotting.

There is a ton of information out there concerning AA. Be careful what you believe. Wikapedia is a good example of poor information concerning AA.

Order the information package on AA from AAMDS.org. https://www.aamds.org/patients/educational-materials

Here is an article that discuss the treatment plans and is written by true experts in the field of Aplastic anemia.

http://bloodjournal.hematologylibrar...1185.full.html

Your sister is in the age range that might perform a Bone Marrow Transplant as the first line treatment.

I was dignosed with Severe AA in March 2012. My numbers are going up slowly after ATG treatment. As Karen said just ask the questions.

Scott Davidson 51 yrs.
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