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Kristin,
Your story is positive, negative, new, and familiar, all at the same time.
Positive because you have survived what is perhaps the worst moments of this disease: finding out how sick you are, and because you have found the determination to beat AA. Negative because of the detour your life has taken, what you're already missing when your body doesn't have the strength it's supposed to, and the risks you face.
New because every patient's experience is different and the way AA affects each of us is very personal. Familiar because so many stories here have the same chapters: mixed symptoms that don't seem urgent, a routine physical, a scary phone call, emergency treatment and transfusions, bone marrow biopsies, multiple doctor evaluations, tough treatment discussions, and the realization that you need to educate yourself, learn how to work within the medical system, and fight back against the disease.
Please keep us informed and we'll join you on this journey.
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