Thread: Father diagnosed MDS or AA hypocellular and treated with ATG
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Old Mon Feb 1, 2010, 10:11 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I would go for another opinion. They really need to pin down the diagnosis to treat this effectively.

ATG can be used to treat some forms of MDS but I would continue to pursue a definitive diagnosis.

At this point you probably don't need to treat the iron unless iron overload was a problem prior to him getting AA/MDS. Do you know what his baseline FE level was before he started getting transfusions?

You really need to be seen/treated by doctor who has experience with these type of blood disorders.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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