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Old Sun Sep 2, 2012, 12:50 AM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Cool

Hi Surfer, very interesting. I have Aplastic Anemia and after reading your post, I looked at the possible Dapsone side effects and also found Aplastic Anemia can be a side effect of Dapsone. I never knew this and ironically was put on Dapsone following an autologous stem cell transplant in 2011. I was only on Dapsone 2-3 weeks and my team decided to change me to another medication because it seemed to raise my liver counts. According to the side effects I read, AA symptoms can appear 2-12 weeks following the Dapsone and my cell counts started dropping within that time line and then totally crashing. We always wondered why this happened because AA is not a typical side effect of an Auto transplant. I am also suffering from immune deficiency and now I wonder if this explains these issues.

I'm so sorry you had this side effect and hope you can be treated effectively.

Best,

Excuse typos sent from my cell phone
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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