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I *think* but am not absolutely sure, that the retic count was the absolute number. The normal range was 25 - 100. The measurement was 10^9/L, and the number was 48.8. So normal, but it should have been high based on my anemia I think.
The other treatment I am on is high dose ARB - it does not suppress the immune system and I feel pretty good on it, it just hasn't had an effect on the blood counts yet. They've had a good success rate with other diseases such as sarcoidosis (>80%). My dad and 2 cousins had sarcoidosis. I don't have that, but I know if I don't try that treatment I will always wonder what if I had, and I have a couple of doctors who said I am absolutely doing the right thing. So if that doesn't work, then I will have to look into something more conventional.
I'm in Canada so I don't think going to the US for treatment is an option, but I am sure the same treatments are available here.
Has anyone's doctor mentioned their bone marrow failure is caused by suppressor T cells?
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