View Single Post
  #2  
Old Thu Nov 21, 2013, 02:28 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
There are a few. I'm not sure they read this site. Let me see what I can do. It might take a few days.

In the meantime, plan on attending the Hope Step and a Cure walk in Houston on March 22. That will be a good place to meet people.

You can start a Community of Hope:
http://www.aamds.org/community-news/...s-and-families

The information on the Walk will be up soon.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote