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Old Thu Feb 27, 2014, 01:58 PM
Ann G Ann G is offline
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Join Date: Feb 2014
Posts: 4
New to forum & looking for some answers

Hi, I've never posted to anything like this before so please excuse if I have not done this correctly. My mother was recently diagnosed (1/9/14) with MDS and just passed on 2/14. We were told that the specialists were not even done reviewing final biopsy results so the only info we received was that it was RAEB-1 (6% blasts). We went to Disney World on 12/6 and she did great. Then on 1/29 she started to spike very high fevers (103 +), so we went to the ER & she was admitted. They did all kinds of testing looking for infections, etc. but everything came back negative. During this time, we heard that the biopsy did show there was some chromosome involvement as well which put her at a higher risk. Still, they had indicated 9 months w/o chemo or possible 18 mos. with chemo. We never had the chance to even think about that because her fevers continued to spike ... she went as high as 104.8 - she received three transfusions while in the hospital and although her CRIT came up alittle, nothing really significant happened. Is this common with this disease? I'm having a hard time because she was my best friend and we were so close but it's really hitting me hard too because I just cannot imagine that she went so fast when in my mind, this didn't even turn into a leukemia yet. Any insights or thoughts that anyone may have would be greatly appreciated.
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Thank you & God Bless, Ann G.
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