|
I can't blame the nurse for leaving the needle in, I should have been more aware. Everything was a bit rushed. They needed the bed for a very sick lady so I was discharged earlier than expected and I had to pack quickly and the nurse had to rush through the discharge process while trying to admit the new patient at the same time. It was chaotic.
After years of investigations and treatments and uncertainties and misdiagnosis and less than optimal medical care, I finally feel that I have a specialist I can trust, a GP who actually cares and wants to learn and a treatment facility that is happy to work with me and take my needs into account too.
My only concern is that while my blood counts don't fall to critical levels as fast as they used to, they are also trending slowly down despite copper replacement. At one stage my counts would return to within normal range after copper treatment but now my HB doesn't go above 105, my WCC doesn't go above 2.5 etc. so while they are still excellent compared to a few years ago they are slowly getting worse. I suppose the bone marrow just can't keep having to overproduce continuously without eventually wearing out. It's been over three years since I've had a BMB....I'm starting to think I'd like to have one just for curiosity.
Birgitta it's good to see that the Revlimid is working. Has it effected your white cell count? Are you taking it in combination with the Thalidomide?
|