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Old Tue Dec 16, 2014, 03:59 PM
Data Data is offline
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Join Date: Sep 2014
Location: Florida
Posts: 245
thanks

Quote:
Originally Posted by Birgitta-A View Post
Hi Data!
You know EPO is made by our kidneys - when our HGB is low the kidneys try to increase EPO that should increase HGB. Many of us have a high EPO at dx because our kidneys have tried during a long time to increase HGB.

My EPO was more than 800 at dx - that means that I never got EPO drugs since they don't work well if the patients EPO initially is more than 500.

Hopefully Epogen will increase your HGB even if you are a "borderline patient" considering EPO treatment .
Kind regards

Birgitta-A
Thanks for the info. I had heard that if your EPO level was high the chance of Epogen working was low but I had never heard the cut off. I guess I shouldn't hold out too much hope. Thanks again.

Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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