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Thank you so much for responding, Birgitta, and others too. I guess I just kind of panicked when I saw them at first. But, yes, I suppose they are what you would call blood blisters but they are real dark. They don't seem to be bothering him and he says they don't hurt, but they look awful.
I need to learn to take a deep breath and try not to get so upset each time something comes up, and I guess I could if it were me it was happening to. But when it's the one you love the most (as Beth says), it's really hard.
Thank all of you for just being there and being so supportive.
I did send off an email to Moffitt just to make them aware of what's going on, but I don't expect an answer until Monday.
Thanks again,
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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