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Old Mon May 9, 2011, 09:13 PM
Laura Laura is offline
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Join Date: Aug 2006
Location: Minnesota
Posts: 433
Quote:
Originally Posted by evansmom View Post
Hi Laura,

You might find this website about chronic fatigue syndrome helpful; the bloggers most recent post describes how weekly vitamin B12 injections have helped him. The more I think about it, the more I feel that your issues are caused by severe nutritional (vitamin?) deficits caused by malabsorption from your gut issues.

http://www.chronicfatiguesynd.com/

I find it so disheartening when I hear stories like yours where doctors just give up, or even disacknowledge, when they can't find the problems. Bad medicine, I think.

I think the Cleveland Clinic is a great idea, and I truly hope they will uncover something and be able to fix you.

Take care,

Nicole
Thanks for the information and the website. The sad thing is that I fit the description of CFS pretty exact. However, I can't get anyone to acknowledge how bad I feel. I will read more into the information on the site.

Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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