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Dear Relentless Against SAA,
Thank you for the response, I will certainly write my congressman on the need to continue funding NIH to research bone marrow failure diseases.
I also agree it seems unlikely the pharmaceutical companies will spend much money researching treatments for 'orphan' diseases such as the ones we are fighting, unless there is some government incentive/assistance.
I'm very glad the pharmaceutical companies develop new medicines, but it seems without NIH, we wouldn't even know that some of these medicines previously developed (ATG, cyclosporine, and now perhaps eltrombopag) can be very effective in treating bone marrow failure.
I too believe NIH is our best hope of finding new and better treatments. If Dr. Young is asking us to write in support of their research, I will write!
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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