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Old Sun May 31, 2015, 11:49 AM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Have you had a bone marrow biopsy? What was your blast count?

You said, I ... considered up to now as MDS as a inconvinence that I could get around". Be careful and not get "behind the curve" with MDS. I went from zero to full blown MDS in about 6 months. Then was on Vidaza for eight months to get my counts ready for a SCT. I had no transfusions before the transplant and felt fine. I was walking the six miles golfing 18 holes right up until the transplant. The rate of progression of my MDS was alarming when first diagnosed until the Vidaza reversed the disease going into SCT.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.

Last edited by bailie : Sun May 31, 2015 at 12:03 PM.
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