[vikasgoyal]

My dad is sensitive to most of the medicines as well which scares us a lot more when we think about putting him on those toxic drugs. He is getting treated in Delhi and as per the doctors they have very limited knowledge on MDS. Although we have shown him in US & UK but the line of treatment they talk about isint any different. I dont think there is a lot known about this disease yet and after reading about the different clinical trials going on it doesnt look likely that we are going to have any new effective drug available soon.

The 3 drugs which are approved are quiet toxic and it does not appear to me as if they actually improve the quality of life or extend the life significantly. Its all very disappointing.