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What a treat!
Not only was the room comfortable, but they also had a kitchen and laundry on each floor in addition to the gathering area on the main floor and a large terrace only a half block from Penn Station.
Two companies sponsored a free dinner on different nights, afternoon tea and yoga classes on another night and then a Relay for Life Celebration on Friday night.
The best part was that we were able to meet other people, two people who recently had BMTs and one of them who was on the same trial as my husband, hopefully a glimpse towards the future. Both of the people who had BMTs are booked to stay for three months so they can be close to the hospital.
They have already confirmed our stay for the next cycle in mid-July and we look forward to seeing a few people who will be there again at the same time.
I'll post an update to our journey in the MDS forum.
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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