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Living with MDS in Oregon
John -- apologies for the late reply -- I took a break from the site and meanwhile started a trial of Campath at NIH.
All my counts are low, and even lower post-treatment though that will hopefully change. Last WBC-.7, Neutrophils-.34, Hemoglobin- 8.9 and platelets-20. I was getting tranfusions every week or so but have now gone
2 1/2 weeks and may have my blood tested less (weekly instead of twice a week)
I go back to Bethesda and the NIH in May and *may* get a sense whether the campath is working. Otherwise I should know in August.
A transplant has never been offered to me as an option. I have no family donor and they tell me my MDS isn't bad enough. My fear is that by the time it is, I will be too old (I'm almost 65)
How are you doing these days? Let's stay in touch.
Nadia
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