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Old Mon Jun 22, 2015, 05:29 PM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Thank you for the information Hopeful.
With these diseases you sure don't know what may happen with the different treatments. As Don has said in the past - you just have to pick your poison and pray for a good outcome. We were very blessed!
The article you linked is about Aplastic Anemia patients of which Don has MDS. A few of the doctors in this link have been or still are doctors at NIH. Dr. Olnes was one of Don's doctors a few years ago. Dr. Neal Young is over Hematology at NIH and Dr. Philip Scheinberg may still be there as well.
While they have had great success at NIH with Promacta and AA, there are obviously risks involved as with any treatment. When Don signed the release form for Campath, one of the "side effects" listed was death. And the Campath darn near killed him.
These decisions regarding treatments are very personal for sure. But in Don's case he really didn't have much choice.
I wish everyone well in their decisions about treatments. While Don is doing extremely well post-Promacta, it was not a cure as we all know. But at the same time, we can only hope that he will continue to do well as they really don't know what the future holds long-term with Promacta.
Thank you so much for your concern and input!
God Bless,
Sally

Last edited by Sally C : Mon Jun 22, 2015 at 06:14 PM.
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