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SallyC and Hopeful, thank you so much for the information. The doctor at UCSF was very careful so he ordered BMB after 8 weeks on eltrombopag and again in another 6 months. He didn't increase his level to 150 mg as suggested by clinical trial guideline and is talking about taking him off Eltrompobag in the near future. That's what worries me as I would think we should at least wait until his platelet gets over 100,000. Right now he is at 38,000. Now he is seeing the doc and does WBC every month.
Thank you so much!
By the way, since he is taking off cyclosporine so early he has lots of cyclosporine left. Do you know where we should donate? Or anyone on this forum may need it? The expiration dates are Nov 2015 and Feb 2016.
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