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Old Fri Jul 28, 2017, 02:49 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
I'm a firm believer in "knowledge is power". I've done an enormous amount of personal web research, particularly in the first year or so after being diagnosed and I believe it has been really beneficial. If I read something I don't fully comprehend I ask my haematologist about it and so far this has always been a positive experience. I'm always interested to know more. I like the PubMed articles and the AAMDSF presentations can be helpful too. I've also read some interesting books.

I think it's fairly easy to discern when spurious claims are being made. There's a certain "flavour" to these types of websites.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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