Anyone with similar experience?
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Sun Oct 29, 2017, 11:24 PM
Join Date: Feb 2008
Location: Dallas, Texas
Just in case you want to find out more about Diamond Blackfan. Here is the site for the foundation.
There is also a Facebook group called DBA Family. It has 700 members.
Dallas, Texas - Age 77 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group
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