View Single Post
Old Sun Oct 29, 2017, 11:24 PM
triumphe64 triumphe64 is offline
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 441
Just in case you want to find out more about Diamond Blackfan. Here is the site for the foundation.

There is also a Facebook group called DBA Family. It has 700 members.
Dallas, Texas - Age 77 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group
Reply With Quote