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Old Sun Mar 6, 2022, 02:52 AM
Andy S Andy S is offline
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Join Date: Oct 2021
Location: Loughborough UK
Posts: 11
Thank you everyone. It's very helpful to hear people's stories as well as me reading learned articles and getting worried!
I'm currently counting the days to my assessment. Abdominal ultrasound, echocardiogram and of course bone marrow. I'm on warfarin due to a previous embolus in my leg so there's Fragmin to start injecting to bridge my anticoagulation during the procedure.
Then to start ravulizumab and hopefully feel less fatigued! There's so much to do?
Strength and peace to all.
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Andy, 68, retired GP, husband of Charlotte for 45y. MDS diagnosed 2001, treated with daclizumab in 2004. Now dveloped into PNH.
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