Thread: My Dad and MDS
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Old Tue Jan 30, 2007, 01:48 AM
Wayne O'Shana Wayne O'Shana is offline
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Join Date: Jan 2007
Location: Vista, CA
Posts: 15
Dad and MDS

Hi Mary:

If your dad huffs and puffs when climbing the stairs he may have a low Hgb count. Do you have any CBC reports to check on this? Maybe your mom or dad can get copies of all his lab work so you can get a better idea of what is going on. It is important to have a folder with all lab reports and a running record of the date and type of any treatment.

Where is your dad going? And try to find out if his doc has any experience in working with MDS. You say he wants to let the doc take care everything without any input from you. The graveyards are full of people who had total faith in their docs, and you may have to be an advocate for your dad even if he or the doc don't give total approval. Best wishes and keep us posted.

Wayne
__________________
Middle-aged (83 yo) dx Nov 4, 1997 w/MDS-RA+pancytopenia, tx about 18 mo. Responded to EPO+G-CSF. Ferritin dropped from 2500 to 480. Three non-fatal heart attacks, five non-fatal strokes and a lot of TIAs. Otherwise in very good health.
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