Thread: Mds/rcmd
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Old Thu Jun 5, 2014, 03:10 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
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RCMD

Hi amiezf,
2006 I got the same dx as your mother - MDS RCMD. You can look att the home page of Marrowforums for info. http://www.marrowforums.org/mds.html.

The first 4 years I only got supportive therapy: txs and iron chelating drugs due to iron overload after txs.

You have to follow your mother's counts and her ferritin value. If she is receiving 2 units of blood twice a month she will soon develope iron overload too.

We have to look out for infections - all infections can decrease counts.
Kind regards
Birgitta-A
75 yo, dx MDS Interm-1 2006. Thalidomide + Prednisone 2010-2013. Since July 2013 Revlimid woth positive effect.
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