View Single Post
  #14  
Old Mon Sep 23, 2013, 06:21 PM
LizR LizR is offline
Member
 
Join Date: May 2013
Location: Las Vegas, NV
Posts: 35
Exjade for Chelation

Winkryda -

Thanks for the article. Bob started Exjade last week after all. Although he is high-risk MDS, his platelets are the one line that stay relatively high. The Dr. said reducing the platelets is the main reason it's not recommended for high-risk. We are only a week in but no side-effects so far.

The Mayo specialist said once a week Desferal was of very little help and the pump wasn't realistic for him. When he started Exjade last week, his ferritin was 2577. That was with Desferal at least once a week.

Bob started chelation after 12 PBRC units. The fact that he had his spleen removed may have contributed to the high numbers. The admitted they didn't really know, they just speculate. They are watching his liver and kidney function to make sure they stay stable. Here's hoping he can continue the Exjade and it works!
__________________
Liz, wife of Bob (64) dx 11/2012 RAEB II now 15% blasts rare t(1;3)(p36.3q21) Vidaza, Aranesp, Exjade
Reply With Quote