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There was nothing that seemed to help him with the exjade side effects. And we tried many things. Homeopathy helps a tiny bit but Exjade always won out in the end. Nausea was the most troubling. He would just have to take a break from it for about a week or two and then start up again. He had the same problem with desferal.
John was on a low dose for about two years. He started at 500 and worked up to 750 mg. 1000mg was too much for him. It wasn't until the last couple of months that his kidney panel was off. Even 250 mg would cause the creatinine to rise.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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