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Old Sat Jan 4, 2014, 12:27 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
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Thank you Birgitta & Tii.

Re Exjade. I was only on this from August-December 2012. My team prefers phlebotomies as long as the patients have strong blood cell levels to allow this. Likely I won't take Exjade again, unless the SAA returns. Physically I felt fine while on Exjade, however my creatinine became elevated so I could only take half the recommended dose.

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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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