Thread: BMT Failure
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Old Tue Jan 12, 2016, 04:08 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I too echo Hopeful's comment on ruling out inherited forms. They tested John even though there was no history in his family. He was 51 yrs old at the time.

When John was undergoing treatment, they discharged him with zero counts. He went in every day for blood products and IV meds. He would get re-admitted if he got a fever though. That being said, Johns Hopkins was set up to handle the outpatient care and when he would have to be re-admitted, he would go directly to the room. All the re-admit paper work was done in his room bypassing all admit processes they make you go through in normal circumstances.

And yes, you can say what hospital he is being treated.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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