A certain amount of GVHD is positive. It means that relapse is less likely to happen. I had all of what you are going through now+. I spent 2 months in the hospital. I went for 3 months without eating or drinking. I survived! It is now 3 years since transplant and the GVHD is not gone but is much better.
For the rash they kept increasing prednisone. It leveled off at 120 mg. a day. I have been on it for 3 years and it caused adrenal failure. Without the transplant I would be dead by now so I have no regrets. Any questions?
For my saga of my first 16 months post transplant search on "16 months past SCT" by rar
Ray
Last edited by rar : Wed Jul 12, 2017 at 04:56 PM.
Reason: added info
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