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Old Tue Mar 21, 2017, 11:52 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Babyking

I've only ever heard of bone marrow being donated, no charge to either party, though of course the procedure itself can cost a lot of money if you don't have coverage of any kind.

I understand your concern about transplants in the circumstances. These are high risk procedures. Not everyone can handle the level of radiation/chemo required. When I was coming up for a transplant, I went through numerous medical tests to determine if my body would be able to cope with it. Though I was cleared for transplant, fortunately I didn't have to go ahead because my blast count dropped.

Unfortunately chemotherapy and radiation can cause MDS, so it's possible that it or another type of leukaemia can return even after what appears to be a successful transplant. It's a big decision to make and I would encourage you not to worry about it provided your counts remain stable, or even better, improve!

Have you had a consultation with a haematologist?
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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