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Laura, the whole thing sounds like a nightmare. I've never heard of such severe heat/UV sensitivity, and with the hot weather you've been having in your part of the country it must be just awful!
Following other peoples' transplants has been such an eye-opener to me. I never dreamed there could be so many complications this far out from the actual event, but I've sure been learning about them from several patients. I sure hope you can find a way to manage all of the GVH outbreaks and get your life back soon! You've been through so much.
I appreciate your keeping us updated.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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