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Old Thu Oct 31, 2013, 05:10 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by k8samp View Post
Just spoke w/Cleveland Clinic & have an appt with Dr Maciejewski next Friday. Also spoke with Leigh Clark, who you recommended and she was extremely helpful and is mailing me some info.
GREAT! I have given this same advice to others here and elsewhere and have had very few takers.

You might try contacting gina66. She has seen him recently.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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