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Avoiding infections
Hello Chirley
You are certainly in a bind. The haematologist is probably used to people having transplants who end up with almost no neutrophylls. We were told that 0.1 was considered low. Your GP should be able to get copies of your BMB results as he needs to be informed properly of your condition.
Is your haem dr attached to a large hospital in Brisbane?
Please go straight to emergency if your temp rises to 38.4 as you would need IV antibiotics. We still boil drinking water your use well filtered water and I watch David's temp if he is off colour. When he had a neutropenic fever while on Revlimid his temp rose very quickly.
I hope you have some satisfaction and answers soon.
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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