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Originally Posted by RichieB
Hi. Fresh diagnosis, and totally new to the game. Trying to get over the mass confusion of what I'm doing, as MF seems to have several names, and is closely associated with other conditions(?) Not medically inclined in the least, and the terminology is overwhelming. Slowly putting some pieces together, from which I may be able to ask more intelligent questions, and have a better understanding of my situation. This might be the place to accomplish some of that. So where would be the best place to hang out, or start a discussion? Thanks for helping me get started.
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Not much discussion on here about myelofibrosis. The lady I know had a bone marrow transplant. She went to another hospital for the aftercare and was told there is treatment for it.
Here is a good place to start. It shows who is doing research and writing journal papers. At this point, I assume you are going to a good hematologist who has lots of experience in treating this condition.
http://clinicaltrials.gov/ct2/result...=myelofibrosis