View Single Post
  #4  
Old Wed Jan 8, 2014, 07:29 AM
RichieB RichieB is offline
Member
 
Join Date: Jan 2014
Location: Indiana
Posts: 3
Myelofibrosis

Thanks. My weak brain is gaining wisdom, I was unaware of so many specific things and teminology associated with MF, and how to understand it all for a specific patient. Able to ask a few better questions, I want to re-consult with my local health care team and hope they can clarify everything up to my current status. I have seen 2 specialists confirming MF via the BMB. I feel confident with both, currently 'accepting' the diagnosis, and both seem to be on the same track for treatment. I think their approach would be matching any other hospital/recommendations at this time.
Think I'm Primary MF. Nothing showing to indicate otherwise. Toss in 'intermediate'? Red, hemoglobin, and platelets low, not excessive, but enough to be Anemic. (Anemia symtoms now obvious.) Enlarged spleen. Will be starting Jakafi any day now. Frequent lab work for CBC on tap to monitor results. I'd like to confirm if I can do various tests at either doctor (for convenience, less travel), and would they work together on the case? That's the best I can explain at the moment. No, have not yet talked to anyone directly with MF. We rare people must be hiding. Thanks.
Reply With Quote