Cheri,
I know how you feel about that wahoo feeling. That is a good part of why i have not yet begun treatment. Estybon has some clinical trial experience in the US and has worked quite well for some patients. Estybon appears to have very manageable side-effects, and the results obtained have come from some pretty tough cases as most of the patients have failed hypomethylating agents. Although the linked article focused on MDS patients, Estybon has had good activity in AML as well.
http://www.mdsbeacon.com/news/2011/0...ogen-eha-2011/
I am wondering if the doctors running the clinical trial have any results from the Chinese studies that they can point to? If you could use that information as some sort of baseline, it may be helpful.
Here's hoping for the sparkly self to return quickly.