Thread: Is there a resource trying to find the causes of MDS?
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Old Wed Dec 21, 2011, 10:12 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
H. R. 640 is a bill introduced in Congress to establish a registry to study all of the bone marrow failure diseases. You can support it by asking your Representative to cosponsor this bill.

http://www.votervoice.net/Core/core...._CULTURE=en-us
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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