I confess to have been lurking on this wonderful site since I was diagnosed with MDS back in October of 2011. I have recieved so much information, wisdom, and knowledge from you "regulars" here, who have been through so much, and now I feel ready to give back a little to this community.
The Reader's Digest version of my story is in my sig block below.
The full unexpurgated version is told on the blog I have started to chronicle my experiance with MDS, and my impending Stem Cell Transplant, scheduled for April 2, 2013, two weeks from today.
http://capnsmarrowblog.blogspot.com/
I suggest you start with the Introduction Post, and trust that any of you medicos out there will correct any errors I may have made in terminology.
Cheers,
Cap'n Chris
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Chris 60, dx 9/2011 MDS,(RCMD w 9qdel) 6 cycles Dacogen. Currently on Neupogen and Aranesp 1x wk, ,transfusion dependent, Scheduled for BMT April 2, 2013 at Duke Med , Durham NC. Allogenic, Sister 10/10 match. Whoopee!
Read all about it here
http://capnsmarrowblog.blogspot.com/