Grifmat
Hopefully the Hematologist will be able to give you more information.
Platelets do not last long. For me it was about 2 days. I used the amicar and only had a transfusion when actively bleeding like from the gums or nose.
That does seem like a lot of Amicar. I am a big person 280 lb and I was on probably 3 tablets 3 times a day with platelets below 10. Hopefully they are checking the cyclosporine concentration in the blood to determine the dosage needed. I am tested every other week and they try to maintain my trough levels at aroung 200. Cyclosporine can also effect kidney function so they typically measure your Creatinine and blood urea nitrogen. Your mom needs to drink a "lot" of water.
Have they talked about ITP, since it is involves the platelets and not the other blood lines.
You are in my thoughts and prayers.
Scott
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Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
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