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I think you will find out that there are always "missing pieces" with MDS. That makes it difficult for everyone involved including the doctors. I have had no side effects of any consequence from the Vidaza, but again everyone is different. Be careful of constipation from the anti-nausea pills (and from the Vidaza).
You might start organizing the information. It helps to see the trends in the treatments from month to month.
The 3-day treatment with Vidaza is something new to me. I didn't know they had a 3-day treatment.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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